It's my life, but not as I knew it!

Posts tagged ‘twin’

Gluten-Free Biscuit

I love Christmas, I love food and I love baking and, although this blog is not primarily about me, these are things I have spent more than an ordinate amount of time thinking about in recent weeks.

The Christmas ads are out; cosy, happy ads showing us all the delicious family foods we could spend our holidays tucking in to. Normally I watch these salivating and planning which foods to buy and which foods I would want to try making. This year I am watching them with different eyes; eyes which are starting to understand the magnitude of someone not being able to eat what most other people can. 

As of October this year, Biscuit was diagnosed as having Coeliac Disease. This was after years of being convinced that she wasn’t absorbing her food properly, months of toileting troubles (leading to embarrassment and a dip in her confidence) and goodness knows how long of discomfort, cramps and tummy pain for my beautiful little red-haired girl. 


For those of you who are not ‘in the know’ about Coeliac, here is my little run-down; Coeliac disease is an auto-immune condition, meaning that the immune system mistakenly see substances inside of gluten (the protein in wheat, barley and rye) as a threat and attacks them. This leads to damage of the villi (finger like projections in the small intestine) which affects the body’s ability to absorb nutrients from food ingested. It is not an allergy or an intolerance. 
When Biscuit eats gluten she gets very constipated, with a bloated and uncomfortable tummy. She also feels very tired a lot. There are lots of symptoms (it’s worth checking out Coeliac U.K. for a list of symptoms) to watch out for, as some of them can seem quite non-specific. That’s why it can sometimes take a long time for a diagnosis to be made. It is important that a diagnosis is made as potential long-term complications of untreated Coeliac disease include osteoporosis, anaemia, vitamin deficiencies and it can lead to certain types of cancer.

The treatment of Coeliac disease is the following of a strict gluten-free diet. This is done with the supervision, support and advice of a dietician. 

So this is where we currently are. We have decontaminated the entire kitchen (cleaned it for top to bottom, sterilised the chopping boards and got a new toaster), got rid of all food containing gluten and refilled the cupboards after visiting all the free-from sections in our local shops. I have spent time with the school inclusion officer (and provided her the Coeliac U.K. school pack) to help the catering company support Biscuit to eat gluten-free school lunches). I have become militant at checking labels! 

It has been a tricky year for us, and I have neglected this blog but we are back and we will be showing you all the gluten-free goodness (and not-so-goodness) we have managed to find during our Coeliac journey. 

Thank you for listening 

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Our Nightmare Weekend 

As you all start preparing for your weekends, please let me tell you our story. 
This time last Friday my beautiful little man suffered his first anaphylactic reaction of the weekend. He was first assessed and treated by amazing paramedics (including one who managed to get a cannula in to a 3 year old’s veins whilst in the back of an ambulance speeding down Tottenham Court Road), then taken straight through to resuscitation before going to paediatric A&E and then spending the night on the paediatric ward. The same thing happened to us again after discharge on the Saturday. 

Our nightmare weekend started on Friday evening and ended on Sunday lunchtime; trust me when I tell you how unsocial these hours felt to me, let alone to the people working their shifts. During this time we were treated (because, yes, they looked after me just as much as him) by paramedics, consultants, registrars, junior doctors, nurses and student nurses, not to mention the porters, domestics and countless other people involved in hospital care. We experienced expert care, amazing treatment, and outstanding compassion. 

I have worked for the NHS for the last ten years (as well as 3 years previous as a student) and I know how hard we work. I know what is it like to be there at someone’s first breath and to hold someone’s hand at their last. I know what it is like to miss Christmases and birthdays (and countless family dinners). I have done 12 1/2 hour shifts with no time to eat, drink or pee. 

So Jeremy Hunt, I dare you to look at the story of how the NHS saved my son’s life (at a weekend) and the story of my working life and say that the doctors are “greedy”, that the paramedics are “ambulance drivers” and the student nurses don’t deserve a bursary. In fact, I challenge you to look me in the eye and tell me that the NHS is not worth fighting for.

#JuniorContract #NotFair #NotSafe #BursaryOrBust 

  

Trendy Tot Thursday (29/10/2015)

Hi everyone! How are you all?

Having come from a huge rugby-loving household I have got really stuck in to the Rugby 2015 World Cup and have enjoyed watching it (even though we went out far too early for my liking!). 

Before the half-term holiday, Biscuit and Cracker had their very first non-school uniform day at school with the Rugby World Cup as the theme. 

  
Honestly, how cute do they look?! Biscuit and Cracker are both wearing England rugby tops, bought by Mammy and Mamps for the occasion. Obviously these are very hard-wearing and tough tops. As they are also half-Italian, they are wearing Italian tops from the 2014 Football World Cup underneath! We couldn’t say fairer than that! 

We teamed Biscuit’s top with her pink leggings from Boots. She was more than a little excited to be able to wear her Frozen Crocs to school as she still loves them. 

Cracker is wearing a pair of denim jeans from Primark with his top, as well as the Cars Crocs I struggle to get off his feet at any time other than school. 

Thank you for reading our #TT_Thursday. For more information, and for other posts please check The Mother Geek and Clearly Bex and look at their wonderful websites! 

We hope to see you very soon. X 

A Poem To My Twins on The Night Before They Start School

To my sleeping Twinkles,

Tucked up warm in bed,

Tonight is the historical night

Mammas like me dread.

Tonight you’re still my babies,

Tomorrow you’ll be grown,

You’re starting your first day at school,

(I shouldn’t really moan).

But I remember your first breaths,

Your first words and your first steps,

Watching you grow up in three short years,

It’s left me feeling blessed.

Now you’ll meet new friends,

And I’ll hear names that I don’t know,

I can only hope they treat you well,

I’m not sure I want to let you go.

Your new teacher will be guiding you,

She’ll teach you all the time,

Please don’t forget that up ’til now,

All your lessons have been mine.

When I see you dressed in the morning,

In your blazers, ties and shoes,

It’s going to serve as a reminder,

Of the tiny outfits I used to choose.

I can’t believe this day is here,

It’s seemed to come so fast,

As we’re preparing for your future,

I can’t help thinking of the past.

You guys used to be so tiny,

You still are in my eyes,

But look at you all ready to go,

Your morning kisses are my greatest surprise.

Good night my baby Twinkles,

I made you both from scratch,

I hope you sleep better than I probably will,

You need energy to help you run and catch.

Good luck in your first day at school,

I know you’ll do just fine,

Just please remember to give me one last kiss,

And whisper “love you Mamma of mine”.

Trendy Tot Thursday (03/09/2015)

Hello and welcome to September! How scary is that. When you were a kid the holidays seem to stretch on forever, but as a Mama who twinks start school next week let me tell you how quickly this September has come! 

  
This week Biscuit and Cracker did not really want to pose! They are pretty tired in the afternoons as they have dropped their naps before they start at pre-school (boy do I miss those naps) and tired toddlers generally equals grumpy toddlers! As you can see, they wouldn’t even walk around the supermarket! 

  
Biscuit is wearing a brilliant blue denim pinafore dress from Gap Kids; she loves the pockets on the front and I love how hard-wearing it is. She is wearing it with a red and white striped t-shirt from Boots‘ Mini Club, it is a little small for her now but works well for an under-layer. We are definitely noticing it is more chilly in the late afternoon now so Biscuit has brought her Slugs and Snails out of summer hibernation and is wearing these. This was the first time since the potty training that she has had tights on and I was initially nervous, but the Slugs are so well made that she has no problems pulling them up and down by herself. Plus they are super easy to keep in your bag for any accidents that may happen when you’re out and about. Biscuit is, obviously, wearing them with her Frozen Crocs. I blogged about their school shoes a couple of weeks ago, we are definitely going to struggle getting their Crocs off to wear them!

  
Cracker let me take one photo of him whilst he looked at the camera and that was it! His amazing t-shirt with dancing monkeys was a birthday pressies from Auntie Carrie (thanks again) and it is from Swedish brand Polarn O Pyret. It is lovely soft cotton and he loves it. I layered this with a plain grey t-shirt from Boots which is now a little short in the body but works well with a longer tee over it. His jeans were bought at T K Maxx and were chosen due to their elasticated waist, which makes going to the toilet much easier for him. He has also teamed his outfit with his Lightning Crocs (I swear that they do have different shoes to chose from but that they always go for the Crocs). 

So there is our tired Trendy Tot Thursday post. For more on the linky please visit The MotherGeek and Clearly Bex for more bloggers’ posts. 

See you next time! 

The Picture That Affected Us All #RefugeesWelcome

On Thursday 03/09/2015 the world woke up to pictures on the front page of most newspapers which I know I will never forget (and which I’m not sure we ever should). 

I have read discussions on social media about whether we needed to see these pictures. They are horrific to see and have caused heartache across the globe. However, it is undeniable that the world seems to have stepped up and started caring since we have seen them. The Independent reports that it took the decision to publish the images of Aylan Al-Kurdi on its front page because

… it is all too easy to forget the reality of the desperate situation facing many refugees. 

The original article can be found here (warning: the images are very distressing) and led to the Indy’s Petition calling on David Cameron to accept more refugees in to Britain (I urge you to join the thousands of people who have already signed up). 

Today is the last Saturday I will have with my own three-year-olds (they are the same age as Aylan was when he stepped into the dingy with his parents and brother) before they start school. We have had a lazy morning  watching Postman Pat and having cuddles on the sofa. Sitting there as a mass of limbs and kisses reminded me (as if I would ever forget) how lucky we really are. Lucky to have a roof over our heads, lucky to have food in our cupboards, lucky to have freedom of speech and lucky to have each other.

I can’t imagine leaving behind our home, our friends and our family (those who are left after the near-total destruction of the town) and taking my two small children on a dangerous journey to an unknown land in the hope of safety and security. Yet this is the situation facing hundreds of thousands of people. Refugees don’t need to imagine doing this, they don’t have a choice. To me, the quote which Warsan Shire, the Somali-British poet, wrote in her book Long Journeys. African Migrants on the Road has really stayed with me;

“no one puts their children in a boat unless the water is safer than the land”

Please remember that there are many things we can do to help the refugees. Please search for them and see what is in your power to do. A great example is my school friend’s gorgeous son who was so touched by the pictures of Syrian children he saw on the news that he set up a Just Giving Page to purchase sleeping bags for them (and if a 5 year old can think like this, I know we all can).

As a human I know I have grieved for all the senseless loss of lives. As someone lucky enough to live in a free and safe country I know we could, and should, do more. And as a mother I know I have hugged Biscuit and Cracker that little bit harder and tighter since I saw poor Aylan lying on that beach.

Trendy Tot Thursday (30/07/2015)

What a beautiful day it was today, we’re just back from visiting family and enjoying the sunshine.

Last week it was Biscuit and Cracker’s 3rd birthday and we were celebrating, hence the radio silence. We were lucky that their party was on the one day that it wasn’t tiddling it down with rain.

  
Biscuit is wearing an amazingly pretty dress from American Apparel, I fell totally in love with it walking past their window display and had to get it for her. It’s in lovely, stretchy, comfortable material and really suits her. I put a pair of short leggings under the dress to protect her whilst playing in the playground, they are from Boots. She is wearing her beloved Frozen Crocs, which she always has on, and her Docs McStuffins baseball cap from George at Asda to protect her from the sun.

  
Cracker is wearing his brand new Baymax from Big Hero 6 t-shirt from Primark (he is currently obsessed with this film and all related accessories, toys and clothes). He has on the shorts he has been fitting in and wearing for over a year from Boots. They are worn as soon as I manage to wash and dry them, he loves them. He also has on his beloved Lightning Crocs and his Minion baseball cap from George at Asda.

  
I hope you enjoy this Trendy Tot Thursday; a lovely fashion linky brought to you by Clearly Bex and the MotherGeek– check out their blogs for more details and check out other people’s blog posts.

See you again soon I hope.